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Manifesto for people affected by MND in Scotland

Social security provides a much needed safety net for people, including those with MND.  Most people with the illness will have to give up work and access social security benefits such as Personal Independence Payment (PIP) and Employment Support Allowance (ESA). 

Under the current UK benefits system, people have to prove they have less than 6 months left to live to be fast-tracked for their benefits.  However, this rule excludes many people with MND because it is a complex and unpredictable terminal illness.  As a result, some with this devastating illness, which has an average life expectancy from diagnosis of just 18 months, never receive the benefits they are entitled to. 

MND Scotland and Marie Curie successfully campaigned to have this rule changed in Scotland meaning that when the benefits devolved to Scotland are delivered, the 6 month rule will no longer apply. 

However, some benefits accessed by people with MND (such as Universal Credit) will continue to be administered by the DWP and for those benefits, people with a terminal illness will still need to prove they have just 6 months left to live.  This is unfair and will create a problematic two-tier system in Scotland. 

MND Scotland calls on all parties to:

Scrap the 6 month rule so that anyone with a terminal illness in Scotland can be fast tracked for the benefits they urgently need, and a 2-tier system in Scotland will be prevented. 

Make your pledge

I pledge to support MND Scotland’s manifesto for people affected by MND and, if elected, to support the #Scrap6Months campaign.

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